Wednesday, July 02, 2008

Pins and Needles: Pain and Relief

Not the stabbing pain you feel when you remove a lesion crust or scab.  Not the crawling sensation on the top of your skin.  The very painful pins and needles that sometimes precedes the crawling sensations.

If you have ever used a TENS unit, a muscle stimulator, or bone growth stimulator, you recognize the  needle-stick pain of having the electrical current short through a single point of skin.  This happens when you have a conductive pad dry out, or don't use enough gel.  All the electrical current that is normally spread out over a wide area bottlenecks through a single point.

I believe our uninvited and unwelcome guests use electrical currents and the pain is because your skin is dry.  The next time you experience that kind of pain, try spreading lotion or moisturizer over the area.  If you do it, please let us know if it worked for you!

Winning a battle...

A few hours ago I noticed what felt like a cool breeze on my arms and legs. What makes that unusual is that I am inside, and that I haven't felt that sensation in a long, long time.

On closer inspection, my callus, as many morg's call it, is retreating. I have referred to it as my second skin, or as having been buttered or waxed (leaving the wax on), or being smothered and covered. Whatever you call it, I am thrilled to see and feel my real skin again.

What we're doing...

There are so many observations and theories shared by Morgellons sufferers on blogs everywhere that certain verifiable facts are beginning to emerge. I hope to use this space to bring these together to encourage sufferers, to test theories, and to reveal the true nature and cause of this disease. I liken it to a huge jigsaw puzzle, where many individuals have and are putting together parts of the puzzle, and here we are putting those sections together to reveal the overall image. This overall view is starting to come into focus, and individual areas have become very clear. I am confident we will know all of these things by the end of summer, much quicker than the CDC or health care establishment, if they would, ever.

Everyone should know that I am not a trained or formally-educated health care provider (doctor, nurse, therapist, and etc.). I do own a health care company, however, and have worked in the industry my entire adult life. Like everyone else, my Morgellons' education has been as fast and furious as it was necessary. I continue to be amazed and confused at the response of the medical establishment. Each time I have reached out for help I have been met with disdain, contempt, ridicule, and a complete lack of compassion. I have considered constructing a directory of compassionate physicians, but there would only be a handful of names right now.

I will share some links in another post. Hopefully we won't be duplicative. It is important that anyone with Morgellons or its symptoms, review all the sites. There is a lot of information out there, much of it enlightening, and most of it encouraging. Everyone is welcome to post, including skeptics. Pleasse don't get personal.